This week is Epidermolysis Bullosa Awareness Week. Go down to the bottom of this page, stop the halloween music. Please watch the video at the bottom. Very powerful video!
I KNOW that Cyndi would be relieved to know that EB has NOT made it back into our family. The entire Delk & Rushing families!!
Unfortunately it is intruding into other families & many children are suffering. Red is the color for EB awareness. It signifies the pain & suffering that these kids go through from the moment they are born until they take their last breath here on this earth! Wear something red in awareness of this horrible disease.
