It's EB Awareness week from October 25- October 31st! Sadly, there is still NO cure for this awful disease. http://www.debra.org/
Wear something red this week to help promote awareness for the horrible disease. I know I will. It may have been 11 years since God took Cyndi from the pain but I still remember VERY clearly what is was like. Cyndi is the toughest person I have ever known. I remember how much she wished for a cure. She didn't like to hear about anyone else having to go through what she went through. She told me one time, " please do not let your kids go through this."
Happy Birthday to our little girl! Mommy, Daddy, Trey & Reagan LOVE you SO VERY MUCH!! We are so blessed to have you in our lives. You brighten our days with your beautiful smile, adorable laugh and huge chocolate eyes. We never know what kind of story is going to come out of that pretty head of yours. We love your personality & the huge heart that you wear on your sleeve. We all pray for your health each & every day. We love you & pray that you have many more healthy, happy & safe years ahead of you!!