It's EB Awareness week from October 25- October 31st!
Sadly, there is still NO cure for this awful disease.
http://www.debra.org/
Wear something red this week to help promote awareness for the horrible disease.
I know I will.
It may have been 11 years since God took Cyndi from the pain but I still remember VERY clearly what is was like.
Cyndi is the toughest person I have ever known. I remember how much she wished for a cure. She didn't like to hear about anyone else having to go through what she went through.
She told me one time, " please do not let your kids go through this."
June 19,1979
July 14,1999
Our Angel On Earth Is Now Our Angel In Heaven
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